newsmortar & pestle
Volume VII, No. 1: January, 2017 - A Monthly Newsletter Summarizing Current CRPS/RSD Research
gold line

Hello, and welcome to this month's issue of the Newsletter, which each month brings you selections from the latest research results in the related fields of complex regional pain syndrome, reflex sympathetic dystrophy, and the pain components of such illnesses as cancer, peripheral neuropathy, phantom limb pain, diabetic neuropathy, certain types of headaches, etc.

This month's art selection is called "How Are You?", by Helen Harley of Dorchester, UK (crayons on watercolor paper; 11.6x8.3"). She writes "...a question which is asked all the time when you are a chronic pain sufferer. One has the choice of sharing far too much with people, or just saying 'not too bad' or something similar..."
Note: Every newsletter features an image from the Pain Exhibit, "an educational, visual arts exhibit from artists with chronic pain with their art expressing some facet of the pain experience." (As always, please click on the image to see the full-sized original in a new tab/window.) I appreciate that these images are supplied by the artists at no charge.

The PowerPoint presentation this month is called "Drugs and Sleep", a good summary of insomnia and the drugs used to combat it.


Links to this Newsletter and many other features from the main site, especially brand-new articles on CRPS, are featured in our Facebook and Google Plus representations of the main site. Personally, I'm not much of a social media person, but this has proven to be worth the effort, as it spreads the word about the site and what it has to offer. Please check it out (and please "Like" it or add us to your circles!) occasionally; it's interesting to see what topics get the most attention and what other CRPS people have to say. You can find our FB page here! If you go there, please do "Like" and/or "Circle" us! Remember, many articles are posted to the FB and Google+ pages that don't make it to a newsletter, so it's a good way to stay ahead of the curve on brand new articles and studies on CRPS/RSD research.

I hope this newsletter is useful to you. Remember that the site has an archive of all past newsletters, so you can look back to any issue since the first! In fact, here's a direct link. The PowerPoint presentations are also archived, and can be accessed from the left menu throughout the site, or right here. Recall, too, that if you'd like to see one of the monthly PowerPoint slideshows but don't own the software, here's a very good, free viewer, courtesy of Microsoft:

Please let me know if you have suggestions, corrections, effusive praise, or want to tell me anything else! I'm particularly interested in suggestions for new CRPS-related topics that I may not have covered or even touched on. Please don't feel weird about suggesting new ideas to me - I'm just one CRPS patient, and I'm grateful for any help in identifying new avenues of hope for our community.


Howard
Webmaster, Researcher, Writer, Editor, (& responsible for all errors).
Excellent Powerpoint Presentation!
Drugs and Sleep
Please click above and "Like" and/or "Circle" us!!
A monthly feature! what are these?
For common medical abbreviations, like Dx, Rx, Tx, etc. please look here.
The most common ones are Rx = prescription; Dx = diagnosis; and Tx = treatment
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Title of Article
Link
Comments
1 Grünenthal Receives Breakthrough Therapy Designation From U.S. FDA for Neridronic Acid for the Treatment of CRPS view The US FDA has just granted Grunenthal Pharma's neridronic acid a designation as Breakthrough Therapy, which can accelerate a drug's approval process.
2 Perks for Chronic Illness / Disability? view There's no doubt that being disabled is a real drag. However, there are a number of perks available to disabled persons, as outlined in this article.
3 Chronic Pain Patient Abandoned by Doctor Dies view Here's a sad story of a man with chronic pain who was abandoned by his doctor due to the CDC opioid guidelines.
4 The Surprise Gift Chronic Pain Gave to Me view I really like the attitude of the woman who wrote this piece, about growing in spite of the endless pain.
5 Diagnosing Fibromyalgia Can Be Long, Difficult Process view We know that getting diagnosed with CRPS is a long, frustrating process. The same is true with fibromyalgia, as is outlined in this article.
6 CDC Spending $4.8 Million to “Raise Awareness” about Prescription Opioid Abuse view Evidently, the CDC doesn't think its message is getting out enough. It's hired an ad agency ($$) to develop messages about the dangers of opioids; they're also making literature for doctors to suggest that the guidelines be followed. Is there no end to this?
7 My Story: Living Through Betrayal & Withdrawals view If you've ever been bounced from physician to physician, without much satisfaction, you'll identify with this woman's story.
8 Frieden to Resign as CDC Director view Dr. Thomas Frieden, head of the CDC and a major author of the guidelines for opioid use, is resigning his position as of Jan. 19. Hopefully, his successor will have more compassion for chronic pain patients.
9 Few Pain Patients Become Long-Term Opioid Users view A very large study has confirmed what we've known all along - very few opioid-taking patients go on to take the drugs over a long term.
10 The 9 Most Frustrating Things About Being Chronically Ill view There are many frustrations that go along with being chronically ill. Toni Bernhard lists the nine that, for her, are the most frustrating.
11 My Story: How Do I get Back to Being “Me”? view Here's the first-person account of a woman who doesn't like the person she's become due to her chronic illness, and wants to know how to regain her old "self".
12 Relieving Pain Should Be a Pro-Life Issue view Those people who are dependent on opioids to have any quality of life know that, without their painkillers, their quality of life just goes down the drain.
Copyright ©2017 - T. Howard Black, Ph.D.
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