Welcome to the
Definitive Library for RSD/CRPS/Chronic Pain!
*Sign up for the newsletter!*
I'm very glad you're here, but sorry for the reasons that probably brought you. This site has only one purpose - to provide accurate information for sufferers of CRPS/RSD (and other chronic pain illnesses) and their caregivers. I'm also an RSD patient, but am in nearly 100% remission - I have no idea why. Now that I have some energy, I'm trying to give back to the community that supported me when I was so sick.
If you have just recently been diagnosed, or think you may have CRPS, the For Newcomers! page is THE place to start (its link is also in the column to the left). Please take your time as you explore this site; there's a lot of information here that's impossible to digest at once. If you have any suggestions, find errors, or want to communicate about anything, please click the "Webmaster" link at the bottom of this page. Or, just click here!
PLEASE sign the guestbook! You can also sign up for the monthly newsletter there. THANKS VERY MUCH!! To do me a quick favor, please click the Facebook icon and "like" this site! Doing this will provide you with a notification every time there's a major site addition. Thanks!
Is this your first visit to this site? Here's a short Site Guide.
P.S. Please check out the multi-part medical search box to the right, so you always know where to go for a quick definition for a term, abbreviation, etc. you're unfamiliar with. From MedLexicon, it's an excellent resource; definitions appear in small pop-up window.
A Note about our Facebook/Google Plus Pages
I don't know how many of you have checked out our representations on Facebook or Google+, but if you haven't, it might be worth an occasional look. It's where I post single articles that catch my eye during research sweeps - ones that I think our community would benefit from. There's no equivalent mechanism for relaying "breaking news" on this site, so the Facebook and Google+ sites are where they go (until they're transferred to this site later). Click on either icon!
Site-Specific Google Search Engine
This is a customized Google search engine that searches only this site for whatever keywords you enter. To begin a new search after you've done one, just click the "x" to the right of the search button. For information about a specific subject, this is the recommended method. Or, just use the menu running down the left side.Search results begin with a few Google adsLoading
Sign the Guestbook!!
Please sign the guestbook! I ask for your e-mail address, but that's voluntary and is used only to reply to specific questions or to send you our newsletter. In any case, it will not appear publicly. You can choose to send a message just to me or leave it in the book; you can also sign up for the very popular newsletter in the same place! Just click one of the images on either side.
The current (March 2017) newsletter is now available (click here)!
Generally, newsletters are published on or near the 15th of each month. All prior newsletters are available
in the archive, as are all of the PowerPoint slideshow presentations that are featured every month. Want to
receive a monthly email with a link to each new issue? Just sign the guestbook (above) and indicate this!
Current Items of Interest/Site Changes
[As items age off this section, they are moved to and available from the Site Archive.]
When a page with a new item is mentioned here, it will always be linked to that page.
The March 2017 issue of the CRPS/RSD Newsletter is online and available! [3/15/17]
The February 2017 issue of the CRPS/RSD Newsletter is online and available! [2/17/17]
The list of doctors who use ketamine therapy to treat CRPS has been updated. [2/3/17]
The January 2017 issue of the CRPS/RSD Newsletter is online and available! [1/17/17]
The December 2016 issue of the CRPS/RSD Newsletter is online and available! [12/17/16]
A new review on Calmare (scrambler) therapy is in the Drugs & Treatments page. [11/18/16]
The November 2016 issue of the CRPS/RSD Newsletter is online and available! [11/16/16]
The October 2016 issue of the CRPS/RSD Newsletter is online and available! [10/15/16]
The September 2016 issue of the CRPS/RSD Newsletter is online and available! [9/16/16]
The August 2016 issue of the CRPS/RSD Newsletter is online and available! [8/15/16]
The July 2016 issue of the CRPS/RSD Newsletter is online and available! [7/16/16]
A new page has been added on Traveling with a Chronic Illness [7/3/16]
The June 2016 issue of the CRPS/RSD Newsletter is online and available! [6/15/16]
The May 2016 issue of the CRPS/RSD Newsletter is online and available! [5/15/16]
A list of physicians using ketamine to treat CRPS has just been added to the "Finding a CRPS Specialist" page! If you have CRPS and are looking for ketamine treatment, this is the list to go for. [4/29/16]
The April 2016 issue of the CRPS/RSD Newsletter is online and available! [4/15/16]
The March 2016 issue of the CRPS/RSD Newsletter is online and available! [3/15/16]
The February 2016 issue of the CRPS/RSD Newsletter is online and available! [2/15/16]
The January 2016 issue of the CRPS/RSD Newsletter is online and available! [1/18/16]
[for earlier items, please see the Archive]
If you're a newcomer to RSD - or even a veteran who'd like some clear, objective information - please check out these articles, from the excellent eHow.com site, and remember that there are many more (the pages link throughout each other):
Thanks to eHow.com for a helpful, excellent series on RSD and making it available at no cost!!
Information from the National Institutes of Health
The NIH, specifically the National Institute of Neurological Disorders and Stroke (NINDS), offers a huge amount of current data on CRPS, of which the following are but examples:
NINDS Complex Regional Pain Syndrome Information Page a huge site, containing more data on CRPS than you may knew existed!
Complex Regional Pain Syndrome Fact Sheet *highly* condensed from the above site, this states the facts about this syndrome
Reflex Sympathetic Dystrophy/ Complex Regional Pain Syndromes (CRPS): State-of-the-Science the proceedings of a meeting of NIH concerning CRPS/RSD, held in 2001, which featured scientific presentations and a summary of directions for future research.
Confused about prescribing laws for controlled substances in your state? Medscape has published a State-by-State Guide!
I hope you find the information you're seeking. If not, please e-mail me by clicking the "Webmaster" link at the bottom of this and most pages in this site (or leave a private note in the guestbook). I have access to excellent research facilities and can generally find things quickly. Plus, now that I've achieved Emeritus status (academese for "retired") from my university, I actually have some disposable time, and it's a service I'm happy to do for my fellow RSD/CRPS sufferers. Please remember that the more specific requests like this I receive, the more complete and useful this site becomes.
Important Site Information - Please click to expand or collapse
A Few Comments from the Webmaster
This list assuredly does not contain every relevant RSD/chronic pain link - far from it! Hopefully, though, a representative sampling is provided. I have personally reviewed every site here - but links are always popping up, disappearing, and breaking, so it's hard to claim that an informational site like this could never be totally current. Thus, this will always be a work in progress, and your help is gratefully accepted.
If you would like to see a link added, or especially if you find an error, I'd consider it a great favor if you would let me know by clicking the e-mail link at the bottom of the page. Thanks!
Oh yes - I'm an RSD patient myself, so if things don't happen instantly on this site, I know you'll understand... Howard
Key to Symbols
- = Somewhat subjective rating of sites, based on amount of useful information, ease of navigation, inclusion of scientific data, many links to other sources of information, overall appearance, etc.
= Excellent sites for newcomers to RSD, who are seeking basic information without loads of technical data.
= Newly-added or -amended item.
If a site isn't rated as you think it should be, please let me know! Lack of a rating probably means I've not yet gotten to it, and any informal ratings of any site here are most welcome.
Important Disclaimer! Please Read!
NOTICE: Nothing in this site is to be construed or interpreted as medical advice, and the author assumes no responsibility for any of the information to which links are provided. Although I am a Professor Emeritus of Medicinal and Organic Chemistry at Eastern Illinois University (EIU), nothing on this site is connected with or was prepared under the auspices or guidance of EIU or the EIU Department of Chemistry. Conversely, the author is responsible for all site content and policies; EIU is in no way associated with or responsible for any aspect of this project.
I welcome input from others with suggestions, criticisms, errors to point out, effusive praise, additional data, different perspective, etc. that will make this site better and more useful. If you would like to send me something, just click "Webmaster" at the bottom of this window. Or, right here!
If you'd like to know a little about me, please click here.
If you're interested in a detailed summary of my own RSD history, please click here.
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